DONE! (ish)

Today was a good day. It was Kerry’s last radiation day and his chemo pump came off until after surgery. To say he’s a happy camper is an understatement. So we are done”ish” with chemo and for sure done with radiation.

The last three days of radiation have been “boost” days. Trust me…it’s not nearly as exciting as it sounds. Really it just means a more concentrated smaller beam. And it brings with it some additional side effects. We are hopeful that now radiation is over, those side effects will be on their way out the door soon. Overall, the doctor seems pleased with how Kerry tolerated radiation. We took the nurses and office staff who cared for him brownies this afternoon as a celebration.

For the next several weeks he will have labs on Mondays and we have a follow up scan on May 9. We meet with the surgeon next Tuesday as a planning appointment to hopefully set a surgery date. Kerry is looking forward to being able to work a whole day tomorrow…although I think the fatigue will catch up with him, but we’ll see.

We also celebrated Zeb’s 6th birthday today. He was super excited to wake up this morning and be 6. We heard a lot of “well I’m six so I can…” today. That kiddo has never lacked confidence and it shows.

Titus also got his braces off today, he was looking forward to gum until they told him no gum because of his holding wire on the bottom. 🙁 But popcorn and chips are a go, so I think he’ll live.

Thank you to everyone who has prayed Kerry through this first round of treatment and his radiation effects. We have appreciated them and saw God answer those prayers in His provision for daily strength and ability for Kerry to keep working. We saw those in his side effects not being worse. Most of all we saw Jesus in those who cared for us and met needs we didn’t know we had. Words can not express how very thankful we are for those who have ministered to us. Whether it be by praying for us, making meals for us or sending a note of encouragement. We are blessed and we have much to be thankful for.

Here are some pictures from today and a song that has been one we’ve included in our “playlist” at home. It’s one Kerry and I have listened to between appointments and in moments of uncertainty. We serve a great God. He is our Rock and our Salvation. In HIM our hope lies.


We started radiation with a selfie and we ended it with a selfie. 🙂
Chemo pump off!

Next steps

This last week Kerry had his port a cath placed to be able to have easier lab draws and for the continuous chemo pump. He also had a head CT scan, PET scan and we met with the radiation oncologist and our regular oncologist again. It was a busy week and felt very long.

The port placement went well. He had an allergic reaction to the soap they used to clean his skin and broke out in hives. So we added that to his allergy list and gave benadryl until it cleared up. The port site seems to be healing well and he says it’s not near as sore as it had been. He went back to work on Wednesday without much trouble.

Kerry’s fancy port. It will allow for much easier access with labs, chemo and IV infusions. After multiple IV starts this week and lab draws, he’s thankful to have it.

Tuesday he had a PET scan and we met with the radiation oncologist. The worst part this week was waiting for the results from the head CT and PET scan. We didn’t get those until Thursday afternoon when we met with Dr. Mattar. The head CT was clear. The PET scan and chest CT from a few weeks ago showed a nodule in his left lung. Dr Mattar felt like it was likely benign, but they will be watching the spot closely and Kerry will have another CT scan in 3 months to monitor.

During his radiation oncology appointment we met with Dr. Rine. He spent lots of time with us answering questions and going over the recommended treatment plan. He was very straightfoward, honest and easy to talk to. They also marked Kerry for radiation and ran through the simulation of what radiation would look like. He got his first 3 tattoos (tiny freckle sized dots) on each hip and lower back to help align for treatment each week.

Thursday we met with Dr. Mattar, we were the last patients of the day. He joked with Kerry about our ‘notebook of questions’ and explained things very well. We have a treatment plan and will be starting that tomorrow (Monday). Dr. Mattar again went over risks and benefits as well as why this is the recommended course of treatment.

Kerry will work a half day Monday until 11. Then he will drive to Newton to have labs drawn and will get the chemo pump put on around noon. His first radiation treatment will be at 2:15 in Wichita. They say that the first couple of weeks aren’t bad, but week 3 the fatigue hits. Kerry is hoping to work as much as possible as long as he is able. Since he will do radiation every day during the week that means he will be working half days mostly. We are so very thankful that his job is willing to work with him and allow him to continue working.

Some specific ways you can pray for us and for Kerry:

  • First and foremost that we would glorify God in all things. Specifically that we would be sensitive to opportunities to share the gospel and the hope that we have in Christ with others. We have a unique opportunity in this, pray that we use it for His purpose.
  • That Kerry has minimal side effects during treatment. He is hoping to work throughout.
  • Pray for our children. That Kerry and I lead them well in times of stress and times of unknown outcomes. Pray that we remember and teach them that our hope does not lie in any medical treatment, diet or lifestyle change, but that our hope lies in Christ and Christ alone.
  • Healing. We ultimately pray for Kerry’s healing and that he will be granted many more years on earth without cancer. We trust that the Lord’s will will be done and even if He doesn’t heal Kerry…He is still good.

We thank you all for the prayers, meals, encouraging notes and acts of kindness you’ve shown to our family. We have been blessed beyond measure and we are thankful.


Waiting to meet with Dr. Rine (radiation oncologist).

A Lesson in Flexibility

So one of things I’ve learned as an adult (especially as a parent) is that it is important to stay flexible. Things, PLANS, change. I’m a planner by nature. I like to have a goal to work towards and accomplish. I like lists, I like crossing stuff off and I like feeling like I’m doing something other than spinning my wheels.

This week we met with the oncologist at the request of our surgeon. The PLAN was that Kerry would have surgery Monday and then we would consider a course of chemo after surgery if it was warranted. It really was supposed to be a meet and let’s talk about post-op appointment, but things change.

The MRI Kerry had last week showed that his tumor has grown through the muscle of his bowel up to the fat layer lining the outside of his bowel. This is not what we were expecting. It complicates the surgery. So no major bowel surgery on Monday.

Instead, our meet and greet with the oncologist turned into a meeting about chemo and radiation before surgery and a discussion about chemo after surgery for several months. We talked about getting a “port” (port a cath) to make venous access and chemo administration easier. There was discussion about radiation being used to help shrink the tumor to make surgery easier and the need to follow with chemo to kill any remaining or migrating cancer cells.

The treatment plan would look like this: Kerry would have a chemo infusion pump M-F with daily radiation treatments during the week. Both would be administered over the next 6 weeks, then surgery, then another 2-4 months of chemo. We are thankful Kerry’s work is willing to work with him since daily radiation in Wichita would significantly cut into his work day and having a port will limit his ability at work.

The oncologist would also like some additional scans. The type of cancer Kerry has metastasizes often to the brain and that’s the only part of his body he hasn’t had scanned yet. They would also like him to get a PET scan.

Needless to say it was overwhelming, disheartening and not at all what we wanted or planned on hearing. There are risks with chemo and radiation. There are risks not getting them too. It’s hard to know what to choose and what risks we’re willing to accept. We’ve looked in to some alternative treatments and some complementary treatments that could help with the side effects of chemo and radiation. I told our oncologist I want the best outcome with the least amount of collateral damage.

The oncologist was very kind and patient with us. He was willing to answer our questions and talk about options with us. He also made it clear that he felt strongly chemo and radiation were what Kerry should do. He said if it were him or his family, this is the course of treatment he would recommend for them.

We are praying for wisdom about what comes next. Our plan for this next week tentatively looks like a CT scan, blood work and port placement on Monday. PET scan and meet with the radiation doctor on Tuesday and chat with the oncologist on Thursday again.

Thank you to all who have reached out to us and who are praying. We are encouraged by those prayers and acts of kindness. We are thankful for the Lord’s daily provision of strength and love and the peace of knowing we are not walking this road alone. This cancer was not a surprise to God, though it was a surprise to us. We continue to pray for healing and wisdom in making decisions. We are ever grateful for His new mercies and grace.