A Rarity

The last day of February is called Rare Disease Day.  The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. 1 in 20 people will live with a rare disease at some point in their life (doesn’t seem so rare does it?). So why am I telling you this? Because 4 years ago one of our children was diagnosed with a rare genetic condition. We haven’t talked too much about it because honestly…at this age it’s very wait and see.

Our son Gideon was diagnosed with Noonan Syndrome-Neurofibromatosis 1 or NS-NF1. It’s actually characterized as Neurofibromatosis with manifestations of Noonan syndrome. I don’t know that it makes any difference what you call it. Even the scientists don’t know if it’s an overlap of these two conditions or if it’s a new disease entity itself…so if they don’t know then neither do I. Noonan syndrome occurs in 1:2500-3000 people. (February is also Noonan Syndrome awareness month). Interestingly, some people can have such mild symptoms they aren’t aware they have it until they have a child affected. In Gideon’s case it is a random mutation (meaning neither Kerry nor I have the condition). Since it’s an overlap of two different diseases, I’ll talk about each of the separately.

Noonan Syndrome a wide spectrum of symptoms and physical features that vary greatly in range and severity. There are lots of characteristics of this disease that do not appear to affect Gideon at this time. He has started to ‘grow into’ some of the physical characteristics that were a bit more prominent at birth. Noonan syndrome is characterized by short stature (he is average height for his age currently, but this may change as he gets older), specific heart defects (he was born with a heart defect, but he has been given the “all clear” and we only have periodic monitoring now). Many kids with Noonan syndrome blood clotting and platelet deficiencies (his were normal this last year, but had been abnormal previously), learning difficulties or mild intellectual disability. Noonan syndrome is an autosomal dominant genetic disorder (meaning if he has children they will have a 50% chance of getting the disease). You can read more about Noonan Syndrome here: https://rarediseases.org/rare-diseases/noonan-syndrome/ Please remember that kids can be affected very mildly or very severely by this disease. Thankfully, Gideon seems to be on the mild end of the spectrum.

Neurofibromatosis 1 is also know as Von Recklinghausen’s disease. This condition is characterized primarily by changes in skin color and the growth of (non-cancerous) tumors along the nerves of the skin, brain, and other parts of the body. The severity and specific features can vary greatly from person to person. Gideon has many more of the features of NF1 in that he has several cafe’ au lait (birthmark) spots on his body. We were at a well child check and the doctor asked Gideon to show her where is heart was. He promptly lifted up his shirt and pointed to his arm pit…where a heart shaped spot is. The biggest concern with NF is the formation of benign tumors under his skin. Children with NF often have tumor formation on their optic (eye) and ocular (ear) nerve pathways. Sometimes these can lead to vision or hearing loss. So far, Gideon does not seem to have any tumors but they typically occur during growth spurts and puberty so we will monitor more closely as that time approaches. Gideon also has what they call lisch nodules on his eyes. These are clumps of pigment on the colored part of his eye that do not affect vision. You can read more about NF here: https://rarediseases.org/rare-diseases/neurofibromatosis-type-1-nf1/

The management for both is symptomatic and supportive. So that’s what we do. For now, we really just treat him like a normal kid with a little closer monitoring. He sees a pediatric dematologist, cardiologist, hematologist/oncologist and opthamologist on a yearly basis. We take a little trip to Kansas City and see all of them in one fell swoop. His appointments thus far have been relatively normal and low key. His heart murmur caused by the defect is almost non-existent and this last year we were told we didn’t have to follow up for 5 years. His blood clotting studies were within normal limits this last check so we don’t have to check again for another couple years. We will see the dermatologist and opthamologist yearly forever. He did go to speech therapy for something call Apraxia of speech (which may or may not be related) last year and will be re-evaluated again this year to determine if he should resume that. We were warned learning may be a challenge for him. Our pediatrician told us he’s the best environment possible to support his learning and education…a house full of siblings who are learning alongside him and an environment where he can be taught how he needs to be.

We’ve known about Gideon’s diagnosis for several years but haven’t shared much about it. Part of that is because quite honestly…we’re not big drama people and didn’t want it to change how others treated him. We still don’t want others to treat him differently. So why share now? It just feels like a good time. I’ve had a couple people recently comment about his physical appearance and how he looks “different” from the rest of our family (we think he looks perfect of course) and also as Gideon gets older we want to be sure we are open with him about his diagnosis. Right now, he really has no idea other than he gets to go to Kansas City every year. We will need to have very frank conversations with him when he is able to understand about the likelihood of passing this condition to his children and just because his symptoms seem less severe his children would not be promised the same outcome. We also share because as he grows the likelihood tumors will develop increases. This can affect physical appearance, cause pain when they compress on nerves and impair his sight or hearing.

We know that God knit Gideon together before he was born and have never doubted the gift that he is to our family. He has an amazing personality and sense of humor. He loves his siblings and babies (ours and everyone else’s) immensely. If I could bottle his laugh I would. We pray that God will protect his vision and hearing, but trust that if these are affected God will provide us with what we need to face that challenge.

So this month raise your awareness about rare diseases. Hug someone affected by one and celebrate their uniqueness!

A day in August

I’ve wanted to sit and write the story if Lily’s birth several times but I could never find the right words. It was such a sweet day. My labor and her birth were an answer to prayer. I’ve relished the details over and over. 6 months later, I’d better get it written or it won’t happen.

Leading up to my due date (August 4), I was increasingly anxious about the impending labor. I worried that it would be very long and drawn out because this pregnancy had been so very different from my others. There was also an underlying current of anxiety that I had trouble putting words.  I prayed often for her birth and for her safety.

Here are the notes I took from her birth:

Sunday morning. 0715. Woke up feeling not great. Just blah. Stupid irregular contractions. I’m feeling them more in my lower back. I’m starting to wonder if I might be pregnant forever or maybe this is labor. I’m not sure.

0744: Text to Brandi (my midwife). Good morning. I woke up in labor (I think). Contractions every 4 minutes lasting 50 seconds. Membranes intact, lots of low back pressure. Baby moving well.

My contractions all morning would get closer together and then space way out. I wasn’t sure this was really it. I was pretty comfortable and I had time to sleep in between. I told Kerry I wasn’t going to church another week without a baby in my arms. So we stayed home, he wasn’t one to argue.

1044: Text to Brandi. Starting to get a little more uncomfortable. Contractions every couple of minutes lasting 50-60 seconds. Baby moving well.

Brandi and Kathy (my other midwife and Brandi’s mother) had just finished church and were going to see a family member who had been ill. I was totally fine with them not coming yet because I still wasn’t sure this was it. At 1130 they texted to see how things were going. Actually…at that moment they weren’t. After my last message to them, my contractions almost completely stopped. So much so that I’d napped. I was so afraid I was going to call them way to early or very much too late and end up having this baby without them (we’ve been there and done that). So they were going to get lunch and then come check on me. That sounded like a great plan to me.

Around 1: Text to Brandi: Not in the tub yet, but it sounds nice. Contractions are every 3-4 minutes and feel very intense. Baby is moving well.

My contractions had changed from being in my back to up front but they were still so irregular. The pool sounded really good, but I didn’t want to get in too early and stall my labor. In the meantime, the little guys went down for nap. My mom had brought lunch and was going to stay until baby was born. I thought we were going to be in for a long day.

Around 1:30 the midwives got here. I was so worried I’d called them too soon and they were going to tell me I was 3cm. The big boys helped carry in equipment and Kerry filled the pool.

Kathy checked me while Brandi started filing out paperwork and setting up. Kathy said the baby was in great position. Then she said the sweetest words I’ve ever heard “You’re a good 8-9cm”. I cried I was so happy. I was so certain this wasn’t the real thing. I may be the first labor patient to cry happy tears about being in labor.

I couldn’t wait to get in the pool and relax a little. It was wonderful! My contractions stayed irregular but were intense when I had them. In between, we talked and joked with our midwives. We had worship music playing and it was perfectly peaceful. Kerry always knows just what to say when I’m in labor. Usually it’s something to make me laugh.

About 2 I started to feel a little more uncomfortable and my contractions were much closer with no breaks. I remember telling Brandi I felt kind of pushy and she told me to go ahead. I felt very calm and collected. Sometimes I have been panicky at the end and I hate feeling so out of control. This time though…it was just serene and wonderful.

Kerry stepped out to let mom know the baby was close. She came down with my second push and I told Brandi “Here she comes” and she was born right after that at 2:18. It was so beautiful. No panic, no rush, just calm and peaceful and perfect. I was on my hands and knees so Brandi passed her up to me. The instant she came out of the water she started wailing. Louder than any of our other babies. She was making her presence known! She was so pink already!

I double (and triple) checked that she was indeed a girl. I was so overjoyed and thankful to have a healthy girl. I was grateful God granted me the privilege of her birth.  There had been so much anxiety that I hadn’t realized. I think deep down I was worried that she would die too. That maybe somehow I was unworthy of having a daughter. I surprised myself and was overcome by emotion. I burst into big ugly crying. I am not a crier by any stretch so it really caught me off guard. I just kissed her sweet head and thanked God for his provision and His blessing.

After that Kerry cut the cord and wrapped her up to show her to the boys while I got out of the pool and dried off. Shortly after that the little guys woke up and got to come meet her. The moment big brothers meet a new sibling is one of my favorite moments ever. It was so fun to see them watch Kathy like a hawk as she weighed and measured their baby sister. She weighed in at a BIG 9lbs 5oz! Biggest baby yet.

 

These first 6months have gone fast. I can’t believe how much joy she has brought to our family. Her brothers love her and they tell her how beautiful she is every single day. She has big brother Gabe wrapped around her finger and she saves some of her biggest smiles for him.

I thank God every day for the blessing of our children. Lily’s birth was such a sweet spot for me. I am grateful that God is His infinite wisdom granted us the privilege of having her in our family. We pray that she grows up to love and glorify Him.

6 years ago

6 years…in many ways it seems a life time ago and it is. So much has changed and yet this day is one I will always stop and reflect on the life and death of our first daughter Lily.

I think of how different our family might be if she had lived and how she never would have existed if Knox had lived. How we could be celebrating the 6th birthday of a son or the half birthday of a daughter who would be 6 in November.

I think about how much I have learned from that experience and the 6 years since. How it grew my faith and understanding of God’s sovereignty. It changed how I care for others.

Today as I turn 29 weeks, expecting our 2nd daughter in August, I think about the blessing of being a mother who has experienced tremendous grief at the loss of a child and who also knows the joy of welcoming a new baby to the family.

We’ve talked about names and how we will honor her memory in the birth of this child, just as we did for Knox when Zeb (Zebediah Knox) was born. We pray that God will lead us to choose the right way to do so without minimizing Lily’s life or her importance in our family.

I’d be lying if I said I wasn’t a little bit anxious as I prepare for her birth. Fear that maybe I won’t be able to hold a little girl at the end of all of this. You see, that’s the crazy thing about grief and losing a baby…you’re never quite sure when it’s “safe” to let your guard down.

I’ve never longed for a daughter like some mothers do, my boys are pretty amazing to be honest. But losing a baby changes your perspective…I don’t care whether I have a daughter or son…instead I long for a live baby. A baby who takes it’s first breath and cries beautiful cries. Who looks at the world with wide eyes and hears her brothers and parents celebrate her birth.

So I pray…I pray for her safety, her life and that whatever happens God will use me in the way He sees fit. I pray that I will surrender to what God has in store. That if He grants me the beautiful privilege of a daughter I will be the mother I need to be for her. That she will grow to love Him and others.

Six years ago, we said hello and goodbye on the same day. We held her for the first time and the last time. We didn’t forget, we won’t ever forget. But we are thankful for her and the way she touched our lives and taught us much about the treasure of life.

Psalm 139: 13-16

13 For You formed my inward parts;

You wove me in my mother’s womb.

14 I will give thanks to You, for I am fearfully and wonderfully made;

Wonderful are Your works,

And my soul knows it very well.

15 My frame was not hidden from You,

When I was made in secret,

And skillfully wrought in the depths of the earth;

16 Your eyes have seen my unformed substance;

And in Your book were all written

The days that were ordained for me,

When as yet there was not one of them.

Rosfeld family update

Things have been quiet on the blogging front for the last few years. As I hope to ease back into posting regularly,  I thought you might like a little update about what’s been going on with our family.

In a nutshell, life is busy. Life with 7 boys is busy. Life homeschooling 7 boys, raising goats and chickens, and working full time is busy. I wouldn’t have it any other way.

Our boys are 15, 13, 9,7,4 (almost 5), 3, and 16 months. There is always something going on here! I recently had the opportunity for all of them to visit Grandma’s house for a day while I worked. It was harder than I expected to concentrate without the normal background noise I’m used to.

This last week we had our 20 week sonogram for baby #8. The boys were excited to find out the gender of this little one. A couple of the boys have been wishing for a sister and a couple of them were really hoping for another boy.

They wanted to do egg roulette as a gender reveal. If you’re not familiar with the concept, we boiled 17 eggs and left 1 raw. We dyed half the eggs blue and half pink. The color of the raw egg represented the gender of the baby. Then each boy took a turn smashing the egg on his head to see who got the ‘lucky’ egg.

Here’s the video we shot of the gender reveal…this is truly what’s it is like to live at our house. 🙂 Enjoy!

 

No excuses

As a mom with a larger than normal family, we are used to having friends with fewer children than we have. We don’t mind and usually they don’t either (unless they have to feed us all and then sometimes I sense a slight bit of panic about all these boys to feed).
I’ve noticed a curious thing lately though. I’ve had several conversations with  friends who have less than my 6 children and I’ve heard excuses. Excuses about why they don’t have more children. It usually goes something like this…
“Well, we’d like to have more children but it just isn’t physically possible”
or  “We always wanted a big family, but due to circumstances we only have 2”.
You don’t have to make excuses. And honestly, I’m just really thankful you’re not telling me that my 6 is more than I can handle or “don’t you know what causes that?” I’m thankful you’re excited when we tell you that we are expecting again.
Sure, we have a larger than normal family and we welcome babies as they come into our family, but we also know that the more children we have has no bearing on our holiness or our standing before the Lord. We know that trusting God for family size means trusting God for both large and small families. We also know that trusting God for family size, includes using wisdom and discernment when it comes to health and childbearing.
The point about trusting God for babies, isn’t about having as many babies as possible to show we’re “super duper” favored. It’s not a contest. The point is to view children as the gift and blessing they are…whether you have none, one or 15.
We are delighted to be surrounded by people who rejoice with the announcement of a new life. We believe children are a blessing, regardless of how many are in your quiver. Seeing parents raising children to love and serve God, embracing the task of parenting and celebrating life…no excuses.

Rosfelds by the numbers 2.0

It’s been almost 4 years since I’ve posted to my blog on a regular basis. I keep renewing my domain name with the hopes that I would find my voice again and get back to writing. But the words never seem to come. The things that I want to say never seem to have enough importance to write…so it has been silent.
One of my resolutions this year was to write more. My goal was to publish to my blog regularly again. Here we are 3 months into the year and my first post…but it’s better than 4 years.
A lot has happened in the last 4 years so I thought a Rosfeld by the Numbers would be a great way to get started again. We’ve moved twice, bought a house, added two babies and bought some chickens. Here is the link to my last “Numbers” post 5 years ago.
Number of family members : 8 (so far) The next question that usually follows is “How many are you going to have” …As many as we’re blessed with. We believe in Jesus-full thinking. (Oh yeah…we’re still one of *those* families. I’ll share more about our personal convictions on another post).
Number of times we’ve moved since Kerry and I got married in 2001 : 12!
Number of pets : 2 dogs, 20 chickens, 1 turkey, 2 goats, 10 cats
Number of loads of laundry we do per day : at least 4
Loads of dishes : 2 per day
Vehicles owned : 3
Gallons of milk per week : 7-8 (thankful we get much of our milk from the goats)
Monthly grocery budget : $575.00
Meals eaten out : 3-4 per month always fast food, Sunday afternoons. 🙂
Legos : too numerous to count, but lots of sets and at least two rubbermaid tubs full.
Instruments played : 5 (flute, drums, trombone, piano, guitar — The 3 older boys are taking piano lessons from Grandma and Otto is teaching himself to play guitar.
Diapers changed : 12 per day depending on bowel habits. This number has gone down recently due to a certain almost 3 year old deciding to wear “big boy” undies (and pee on trees).
Outfits : 8 per day. We have at least two kids make one change of clothes each day which is why we do 4 loads of laundry each day. 🙂
Computers : 5. My work computer, Kerry’s computer and 2 for school. The last one is one sitting next to the piano ready for target practice.
Cookbooks : 40 at least. I like them for recreational reading.
Floors swept : 4 times per day. That’s our goal anyway…
Vacuuming : 4 times a week. If I can feel dirt on my feet when I walk I know it’s time to vacuum, I have 6 boys there is always dirt on the floor.
Pairs of shoes : 35-40. The range is because we can’t always find both shoes at the same time.
Hours of sleep : Kids : 11-12, those napping get 14, Grown ups 5-6. This time change is going to be miserable.
Hugs and Kisses : More than we can count, but never enough.
It wasn’t the meatiest post, but it’s good to be back.

Four years ago

Four years ago today I had one of the most amazing and rewarding experiences of my life. I had an awesome homebirth. It was what I needed to heal from some less than ideal birth experiences. It was my first VBAC after 3 c-sections. For those who haven’t heard or read the story, I’ve posted it below the pictures.
Titus has been such a blessing to our family. He is challenging some days with his strong opinions and preferences but he is oh so wonderful in our family. He has a stubborn streak a mile wide but he also loves and cares so deeply for those around him.  I look back at the day he was born and am so thankful for the prayers God answered that day. We continually praise Him for the blessings He’s given us and His provision. We are thankful that God allowed Titus to be born at home (something we prayed for daily from the day we found out we were pregnant)  and so thankful that we have been blessed with 5 happy healthy boys.
Below are a couple pictures from the day he was born and the days following and some more recent pictures too.


The 3 big boys on 8/26/2010
They were amazingly chipper and happy for being up so late the night before. Both Gabe and Otto stayed up until about 2am to watch Titus get checked over by our midwife. Otto couldn’t keep his hands off of his baby brother. We watched the video recently and could hear ourselves asking him to move because his head or his hand was in the way of trying to do the assessment. Zeke was the only one that night who got a good night sleep.

The next morning our birth photographer came to take pictures of our new little addition. He seems so little looking back. We loved getting to know all of his little features as a family. There is just something about a newborn baby that begs to be touched, held, kissed and loved.
He really enjoys waffles for breakfast.
Because what boy could resist mud?
BIRTH STORY (this is the story I posted a few days after Titus was born to Facebook)
We have been so blessed with the addition of Titus this past week! I’ve had several people send me messages asking if his homebirth was “on purpose” so I thought I’d write an abbreviated version of our birth story. In short…yes his homebirth was on purpose and it was awesome!
His birth story begins kind of with Gabe’s almost 8 years ago. I had a c-section with him after a failed induction at 37 weeks. With Otto I had a repeat c-section and when it was time for me to have Zeke, my doctor who had initially been VBAC (vaginal birth after a cesarean) friendly changed his mind and threatened to drop me from his practice. I felt very backed into a corner and consented to my 3rd c-section.
When I became pregnant with Titus, I wanted a different outcome and began researching my options and the current research regarding having a 4th c-section to having a VBAMC (VBAmultipleC). The research is limited, but what there is shows that even VBAMC are relatively safe and the risk of uterine rupture (which is the big fear with VBAC) is still less than 1-2%. The current culture in the hospital is not VBAC friendly even after 1 c/s and is definitely not friendly after 2 or more.  So I began researching a homebirth with a midwife, discussing options and research with Kerry and covering each decision with lots of prayer. I would encourage any woman to do her research and pray before making her birth choices. There is a lot more support for VBAC there than some would have you believe.
We found a midwife , who was also a believer,willing to take me as a client and began our journey. My pregnancy, like all of them, was uneventful and pretty normal. As part of my care, I saw a chiropractor once a month to help align my pelvis and spine and help position baby correctly. One of the reasons I had a c/s with Gabe was because he was malpositioned, so I wanted to avoid that if at all possible.
We prayed regularly as a family for God to honor our desire to have more children (something that would be really frowned upon after having 4-5 c/s) and our desire for a homebirth. Every time fear would creep in, we’d pray and turn it over to God. He has answered so many prayers along the way!
Towards the end of my pregnancy, I started to get nervous that my body wouldn’t know what to do. It had never been asked to actually “get a baby out”. I was wondering if it would know how to go into labor, how to birth a baby, and would I be strong enough to do it?
The day after my due date I started having a few contractions, but they weren’t terribly uncomfortable or regular, although they felt different from the contractions I’d been having for weeks. We spent the day running errands, I made a quick visit to the chiropractor (just in case this was really it) and napped in the afternoon. My contractions kept coming, but were still irregular and relatively comfortable. I called our midwife a couple of times during the day to update her, but felt like it was going to be a long evening/night if this was the real thing.
That evening about 7pm or so we took a mile(ish) walk around our neighborhood. My contractions were still irregular, but I had to stop a couple of times to let them pass. I was still able to talk through them. Being a L&D nurse, I really wasn’t sure this was going to be it or that it would be any time soon, because nothing was textbook. 🙂
I decided to rest and just hang out that evening and talked to our doula and photographer about 10pm. I talked to her through a contraction and told her I wasn’t sure I’d need her yet, but she could come this way just so she’d be here when I did. Mom and I set up the air mattress in our spare room because I was sure they (the doula) would be sleeping here. I also called the midwife and told her I was still doing fine and I’d have Kerry call when we needed her, but not to worry I thought it was going to be a while still.
I laid down on the couch to get some rest, and had one really big contraction that was quite uncomfortable. But the next couple were manageable again. Mom suggested I put a towel under me “in case my water broke”, I was sure that wasn’t going to happen, but though I would humor her anyway. (I was glad for the suggestion, as with the next contraction that’s exactly what happened). My water broke about 10:30 and that’s when things got “fun”. Kerry called the midwife to let her know and she said she’d head down. Kerry and I came upstairs to fill the pool (we had set up a little pool in our bedroom for me to labor in) and my contractions started coming much much faster and stronger. Mom and the big boys (Zeke was asleep) were downstairs watching a movie and had no idea things had really picked up.
I spent about 30 minutes in the pool and then walked to the bathroom. Once I was there my contractions were so intense and my mind was racing. Kerry says I was really pretty calm, but in my mind I was going nuts. At one point I told Kerry “I’m hysterical….I can’t be hysterical”. He said later he didn’t know what I was talking about as I was barely saying anything and appeared really calm to him. He wasn’t (at least he didn’t act like it) scared or panicked at all. About 10:15 I felt my body pushing and I couldn’t stop. In my head I was sure I wasn’t ready to push and was worried I was going to do something that would make my labor go longer.
At that point, Kerry took the cell phone to mom and asked her to call our midwife to let her know I felt like pushing and to hurry. 🙂 The midwife told me to go ahead and push if I needed to and that she was about 15 minutes away. Mom and Kerry stayed in the bathroom with me and the boys kept watching their movie. Kerry suggested I move to the pool again, because he thought I would be more comfortable and it would be easier to birth there. I made it about two steps before I said “I can’t” and kneeled on the floor. (I found out later both mom and Kerry thought I was just having a contraction, not birthing a baby)
The next thing I really remember was telling mom and Kerry “there is his head” and to “check for a nuchal cord” (a cord around the neck). He had a loose one that we could easily slip over and the rest of him was born. I was able to put him right on my chest and we covered him with towels  and dried him off, he was pink right away. I think I kept saying “I did it! I did it!” Kerry was so excited, but still very calm and had the presence of mind to grab the camera and take a few pictures.
He asked the big boys if they wanted to come see their brother and they both ran upstairs. Gabe (***note we later found out that Gabe handed the camera off to Otto) took the camera and took pictures, and he did such a good job! About 10 minutes after he was born our midwife came in. The apprentice midwife came about 10 minutes after that. Titus James was born at 11:32pm on 8/26/10. He was direct OP (which means facing up instead of down, the same position Gabe was in), but I truly think prayer, positioning and the care I received made all the difference. He weighed 7lbs 11oz (my second biggest baby) and was 19 3/4 inches long. The rest of the story is pretty “routine” for postpartum, but it just all happened at home which was awesome!
I didn’t really think I would go that quickly in labor, especially since I hadn’t done it before. I was completely surprised by the whole experience, but it was exactly what we needed.
I fully believe in birth choices. I think women should be able to choose when, where and how to give birth. By in large, those choices are being taken away for many reasons. If a woman wants to birth in a hospital, home or birthing center…let her. If she wants to VBAC or schedule a repeat c/s…let her. I often heard after my c/s that what really mattered was a “healthy mom and healthy baby” which is true…but that health also includes mental health. For some women it is mentally and physically the best choice to have another c/s, for others it is the option to have a VBAC.
For me, this time and every time from now on (Lord willing), homebirth will be my choice. I pass no judgement on whomever chooses something different for their birth. It is important that the risks vs benefits are considered for each option and in each case. And for each woman make the decision that is right for her, her family and her baby.
Each birth and each child is special and a blessing however they come. This birth for me though, has been incredibly healing, empowering and faith building. God is good and we are so thankful for His blessings and His faithfulness. I want to add too, how incredibly important it was for me to know that others were praying for me. My midwife, my doula, our families and friends. I believe God honored those prayers and they brought me so much peace and confidence throughout this whole process. He has blessed us many times over!
Praising Him,
Erin

 

Two Years ago

Two years ago,  yesterday actually, our daughter Lily was born. I didn’t forget about her yesterday, I remembered her birth, but I didn’t write about it. I didn’t write about it because I couldn’t put it all in to words. How much she meant means to us, how much it still hurts sometimes to think of her death. I spent this weekend writing an article (out in December) about the hope I have in relation to the birth of a baby. It was a tough article to write. So I was spent.
It’s been interesting for me working again in L&D. My perspective has changed from when I was here before. I still enjoy it, but I’m even more in awe of the miracle birth is than I was years ago. The lives of Knox and Lily have made me so very thankful for every birth that happens. I was in a room last week and it was all I could do to keep from grinning like a big dumb idiot because I was just so happy for the parents that they were getting to welcome their baby. I mean seriously happy, elated, for two strangers that they were completely in love with their new little one. It’s caught me off guard.
I found myself working yesterday on her birthday. I thought about her a lot and what we were doing two years ago, waiting for her to be born. And when I came home, I snuggled my baby Zeb. As I breathed deep on the top of his head I thanked God for his safe birth just over a year ago. I thanked God for the perspective and the growth, as difficult and painful as it was, that He’s given me because of Lily’s birth. I’m thankful for the opportunity it’s given me to care for others.
Two years ago, we said hello and goodbye on the same day. We held her for the first time and the last time. We didn’t forget, we won’t ever forget. But we are thankful for her and the way she touched our lives and taught us much about the treasure of life.

Raising boys — Resources

If you’d have told me when we first got married I’d have 5 boys…I would have laughed in your face! When we got married we knew we wanted to have a big family but I though surely I’d have a girl in there some where!
So here I am…mom to 5 boys who are 11, 9, 5, 3 and 9 months. And I love it! *Almost* every single minute of it. (Remember that Finding Joy post?) I can’t tell you how many times people comment about our brood of boys…either they are completely shocked that anyone would intentionally have FIVE children! Or they’re shocked that I’m still sane after having 5 boys (and you should see the looks I get when I tell them I’m homeschool them!)

Honestly, I think it can be super overwhelming to be a parent whether you have girls, boys or a mix of both. I am so thankful for other parents who offer insights, share lessons learned and in general give parenting “hacks” we can all benefit from. I want to share a few resources we’ve found helpful along our way.
One of my favorite books is Raising Real Men: Surviving, Teaching and Appreciating Boys By Hal and Melanie Young.

Hal and Melanie are the parents of 7 children, 6 of those are boys! I’ve had the privilege of hearing them speak at several homeschool conferences and I’m always encouraged by them. The book is entertaining and full of practical tips from dealing with bickering and fighting to how they handle guns and playful wrestling.
Something I’m learning as my boys get older is that sometimes they can be a bit angry. Anger is something one of my boys really struggles with. He comes by it honestly. He’s a son of Adam so struggles with sin as we all do. And his mom and dad have both been known to lose their temper more often than we’d like to admit. The Heart of Anger by Lou Priolo has been our go-to book when it comes to this issue in our home. I’m only about half way through but it’s challenged me and given me practical wisdom for dealing with this issue.

Another great book by Lou Priolo is Teach them Diligently: How to Use the Scriptures in Child Training


I didn’t grow up in a home where scripture was woven into our daily conversations or lessons being taught so it’s been a challenge for me to figure out just how this looks in practice. This book helps formulate that picture for me and while it’s still a work in progress in my life, it’s helped me implement scripture in to daily lessons.
For some comedic relief I’ve really enjoyed Boys Will Be Joys by Dave Meurer.
There are days when stuff happens here at home and I can only shake my head. Sometimes I don’t think anyone will believe the craziness that’s gone on here. Like the night we found gum in a belly button or the fact that one of my children often forgets to take off his pajamas before getting dressed in the morning. Boys will be Joys had me in stitches one minute and in tears the next. He gives a few pointers along the way but mostly it reminded me that even with all the craziness that goes on…boys are delightful and bring so much joy to our family.
Trust me, I by no means have this whole thing figured out but I’ve learned a few things and I’ll be sharing those in the coming weeks, but these books have been a good start when it comes to resources for just what to do with these creatures we call sons. Do you have some resources you’ve found helpful in your parenting journey?
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Asking Questions

When I was studying for my Master’s degree, we spent whole courses exploring how people learn and why we teach the way we do. We took quizzes about kinesthetic, auditory, and visual learners. We talked about how we often teach the way we best learn. So when it came time to teach my own children at home I started thinking about the ways they would best grasp concepts within difficult subjects. And while I’ve employed some of these strategies and theories to learning…the best tool I’ve found to teach my children is to ASK QUESTIONS. Lots of them.
I started thinking about what I want my end result to be. Do I want them to just be able to regurgitate information for a test or a room full of people like a trick pony? And the answer is no. I don’t want them to be vats of useless knowledge…full to the brim of facts and statistics, theories and formulas with no ability to apply them. I want my children to think for themselves…to know where to go to find information, how to put that information together and draw a conclusion that is right and real for them.
When I teach my nursing students, it is so tempting to just want to open their brains and dump information in. I do lecture a fair amount, but I try to ask questions, to get them to take the next step to a conclusion on their own. I can’t tell you how many times potential employers would say “Just give me someone who can critically think…I can teach them to do any skill.” I think the same goes for my children.
I ask questions to teach them…to let them think things through. I want them to process the information, consider the options, weigh the results and determine why, when and how. It’s not enough for them to spit it back at me, I want them to be able to tell me why they picked what they did.
It doesn’t just go for school, but more importantly for their faith. I want my children to own their faith…not mine. I want them to follow Christ, to seek after Him and to do His will. I want them to know the Bible is true and that is sufficient for EVERYTHING. But I don’t want them to know it because I said so…I want them to know it because God said so and He called them to follow Him. I want them to find the path God has for them, not the one I want. I want them to wrestle with the tough questions, the challenges they face and I want them to ask questions and find the answer God has. More importantly, I want their faith to be tangible to them, not some paper thin replication of mine, but the kind of faith that is sturdy, the kind they’ve built with God themselves and I want them to be able to defend it to a world that will tell them they’re wrong.
I ask my children questions to teach them, to guide them, so that they can ask the questions and find the answers for themselves. By asking questions, I hope to allow my children to make what they are learning their own. I hope they will be able to know what they believe and be able to defend and articulate it. Because that’s the important part…not just the “correct” answer, but why.